Provider: Silverchair
Database: AmericanMedicalAssociation
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TY  - JOUR
AU  - Clayton, Ellen Wright
AU  - Bland, Harris T.
AU  - Mittendorf, Kathleen F.
T1  - Protecting Privacy of Pregnant and LGBTQ+ Research Participants
PY  - 2024
Y1  - 2024/05/14
DO  - 10.1001/jama.2024.4837
JO  - JAMA
JA  - JAMA
VL  - 331
IS  - 18
SP  - 1527
EP  - 1528
SN  - 0098-7484
AB  - Research using data from large numbers of people aggregated from numerous institutions is essential to understand and address the causes of health disparities affecting pregnant and LGBTQ+ individuals. Yet some people in politically vulnerable groups like these worry that data about them used for research can subject them to prosecution. Pregnant women have long been both excluded from research and prosecuted for their behavior during pregnancy, the latter risk now magnified for those living in abortion-restrictive states. Laws limiting and even criminalizing the actions of LGBTQ+ individuals and their access to health care may increase personal risk from use of data about them in research.
Y2  - 5/20/2024
UR  - https://doi.org/10.1001/jama.2024.4837
ER  -