RT Journal Article
A1 Clayton, Ellen Wright
A1 Bland, Harris T.
A1 Mittendorf, Kathleen F.
T1 Protecting Privacy of Pregnant and LGBTQ+ Research Participants
JF JAMA
JO JAMA
YR 2024
DO 10.1001/jama.2024.4837
VO 331
IS 18
SP 1527
OP 1528
SN 0098-7484
AB Research using data from large numbers of people aggregated from numerous institutions is essential to understand and address the causes of health disparities affecting pregnant and LGBTQ+ individuals. Yet some people in politically vulnerable groups like these worry that data about them used for research can subject them to prosecution. Pregnant women have long been both excluded from research and prosecuted for their behavior during pregnancy, the latter risk now magnified for those living in abortion-restrictive states. Laws limiting and even criminalizing the actions of LGBTQ+ individuals and their access to health care may increase personal risk from use of data about them in research.
RD 5/20/2024
UL https://doi.org/10.1001/jama.2024.4837